What comes next?

Last night we celebrated Samhain on Plot 44. A place where I garden, and where I share the cycles of nature that I find so calming and necessary to have in my life. And no, it has nothing to do with breast cancer, well other than being a place of solace for me.

30 October 2012, candles in the dark at Plot 44. Samhain.

And I need a place of solace, I mean I think we all do, I need somewhere to go to find peace, to turn off the outside noise and distractions. Even though I do have a two excellent tools – a very finely tuned shit filter (yes, you read that right, everyone should invest in one, and they’re free); I also have a well-oiled quack-o-meter (yes, I prefer informed discussion) – despite both of these essential tools, I still find there’s too much noise in my life at times.

Nearly six years now since I was diagnosed with breast cancer. But despite the circumstances that propelled me into the breast cancer community, I’ve found some extremely supportive and valued breast cancer friends:

“But I am not turning away from that community, no. I’m still here, but just so tired, so worn out – by the years of being a breast cancer patient, and now after months of working on Rachel’s book reminding me sharply and keenly, and reminding all of us too, that we simply haven’t got the right tools at our disposal to stop women from dying of breast cancer.”

And this year has been a very difficult year for me. To lose Rachel so suddenly, my dear friend. The grief has been enormous.To be immersed in her words and work on her book has meant I’ve had little time for much blogging of my own, or reading other people’s blogs.  And over and over I hear the same arguments and questions about the mainstream breast cancer culture. The pink-washing, the lack of research, the lack of awareness of metastatic breast cancer. I don’t want to keep repeating myself. Continue reading

World without cancer

Some days chocolate is a necessity. Real friends know when.

Let’s face it, Facebook has redefined what we mean by ‘Friends’. You know when someone asks if you know so and so, and maybe you reply, ‘Well I do know her/him, I mean she/he is my friend, well my friend on Facebook that is.’

Does it mean anything?

I’m one of those people who have in the past accepted every friend request on Facebook, only to regret it days later when my News Feed is filled up with Farmville requests or some other Jewel type annoying games. Well I think they’re annoying anyway. That’s not what I want to use Facebook for. Or announcements about what you’re watching on TV right now. No thanks, I’m just not interested. And it amazes me how the most banal comment can attract 28 comments. I just can’t do trivial. I mean I love to engage with real lives, and lives lived in joy and delight. And I do enjoy ‘normal’ now a lot more than I ever thought I could. But sometimes I feel that my world is filling up with trivia that doesn’t enhance it, and anyway, really how can anyone have 1,159 friends? Or 159? Maybe 59 at most? If you are seriously going to engage with them and have meaningful conversations as well as some fun. By the way, I don’t know the right answer. I hate those Facebook messages that go ‘post this if you’re really my friend, let’s see who is paying attention’, because what I think is well, no actually, if you’re really my friend – TALK TO ME.

So, I’m one of those Facebook users who does cull their Friend list. Yup, I unfriend people. And you know when I unfriend someone with 2,543 friends, I know they won’t even notice. If I wrote on their wall, would they even notice? And when I get a Friend Request, I respond with a message, ‘Do I know you? Have we met? Do we have something in common?’ Because I’m not interested in becoming ‘friends’ with someone if we don’t have something to talk about. I mean, real friends, that is people I know in the flesh, I interact with them, I chat, heck I even have lunch with them sometimes. And I am careful who I spend my time with. Because I know that time is limited. I feel that more keenly now. No, I’m not being a miserable cancer patient who’s predicting doom and gloom that will result in my early death. That’s not what I mean. I also know that I have less energy now too, and the energy I do have I want to spend it wisely. Not waste it. I can’t. It would be unfair on myself.

What I mean is, that doing this blogaday has shown me something. It has shown me how deeply affected I am by the conversations I have when they are real. Continue reading

‘The enormity of our task.’

Audre Lorde

I’ve recently finished reading The Cancer Journals by Audre Lorde for the sixth or seventh time. It’s such a deep and inspiring read. Every time I read it I find I am touched again on many levels by Audre Lorde’s insightful and skilfully expressed emotions – anger, loss, fear – they jump off the page.

I bought this book over four years ago newly diagnosed with breast cancer having recently had a mastectomy in March 2007. At that time I hung around in the cancer sections of bookshops looking for, well, looking for what? I’m not sure  – answers maybe to all the ‘whys?’ I had:

Why me? Why so young? Why so little choice? Why do I feel so alone?

And did Audre Lorde answer my questions? I think, actually, now looking back through the years which I see now as layers, I see there are shards of answers to all the ‘big’ important connections I’ve started to piece together, and they have all started from seeds in this book:

  • the links between the causes of breast cancer and the environment;
  • the sense of a ‘bigger’ industry, Cancer Inc.;
  • and particularly about how women are encouraged to treat breast cancer so, ‘nobody will know the difference’.

Audre Lorde writes The Cancer Journals in 1980. That’s 30 years ago. 30 years. Wow – that’s a long time. For so little change. Continue reading

Green silence

This week I am reminded, again, that I am a breast cancer patient. The doctor’s appointment yesterday. His empathy and understanding. I can hear my words echo in his small office, I don’t really know where they came from. I don’t cry but I can hear a lot of emotion in my voice. His honesty when he tells me that other cancer patients express similar feelings after treatment, about anger and sadness and grief. And that they can last a long time, maybe a year, he says. 

I am drawn back to Audre Lorde’s words in The Cancer Journals. She wrote this book in 1980 after her breast cancer diagnosis and mastectomy. She writes so well about her pain, her loss, and her anger. She has been, and continues to be an enormous inspiration to me. 

‘I have found that battling despair does not mean closing my eyes to the enormity of the tasks of effecting change, nor ignoring the strength and the barbarity of the forces aligned against us.’

I recognise myself in her words. My desire for change, change in how we view breast cancer, serious not trivial; how I want it to be a disease that we prevent.

‘It means for me, knowing that my work is part of a continuum of women’s work, of reclaiming this earth and our power, and knowing that this work did not begin with my birth nor will it end with my death. And it means that within this continuum, my life and my love and my work has particular power and meaning relative to others.
It means trout fishing on the Missisquoi River at dawn and tasting the green silence, and knowing that this beauty too is mine forever.’

I think I want to find myself doing more of whatever my own version of trout fishing is, and tasting green silence.