Future safe

This post is being published on 1 October 2012. On that day I will be somewhere in Cumbria, with Gemma, walking and remembering my friend Rach. It’s the beginning of Breast Cancer Awareness Month. So, here’s a refreshing antidote to all that pink. We are publishing Rachel’s blog, ‘The Cancer Culture Chronicles’ as a book.

While I am away, my blog is left in the capable hands of my guest editor, Ronnie Hughes. I will catch up with you when I return.
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“I will never forget you Rach.”

I have written that and said that over and over again. I didn’t write it as a promise, but in a way it has become one. Although, would Rach have laughed at that with its ring of ‘the promise’ that Susan G Komen’s Nancy Brinker made to her dying sister?

Dying sisters aside – although it certainly felt like I lost a sister – this is about never forgetting. And future-safing. Future-safe. What’s that? In January 2011 Rachel wrote a blog post called ‘Preserving our Digital Legacy’, where she asked the important question of:

‘What will really happen to our blogs etc., once we are gone?’

Losing Rachel

Rachel and her dog Newman

My friend Rachel died on 6 February this year. From metastatic breast cancer. She was 41. She will be greatly missed by her beloved husband Anthony, her family, her friends, her dog and the thousands of people who read her sharp, angry and witty words on her blog where she challenged mainstream breast cancer culture: The Cancer Culture Chronicles. She was my friend. In fact, she was one of my closest friends, found in the blogosphere and we became close despite the 3,500 miles that separated us. Her death came too soon, I was not ready for this and the grief has been profound.

In the grief of Rach I’ve been remembering other things. Sort of introspectively remembering my life since my breast cancer diagnosis, things that happened.

So not right

February 2012. Flying to New Jersey to say goodbye to Rach.

On the way home from New Jersey I find myself in a window seat next to two British women on the plane. They were sitting in front of me on the way over and I remember them, they are happy, laughing, enjoying themselves. The inevitable ‘what did you do?’ conversation ensues. They’ve done ‘everything’ in New York, having travelled over to see Barry Manilow in concert (does he still play I wonder to myself, although the women tell me he wasn’t well and the concert was cancelled.) So when it’s my turn I just say I went to a funeral. ‘Oh,’ they say. ‘My friend died,’ I say. ‘Of breast cancer,’ I say. They look at me. ‘How old was she?’ they ask. ‘Forty-one,’ I say. ‘Oh,’ they say. ‘It fucking pisses me off good style,’ I say. I don’t mean to swear but I’m so angry. And all this last week I’ve been having very short conversations which punctuate very long silences which consist of few words, ‘This fucking sucks.’ Because it does.

I look out the window. The runway, we’re moving out now. ‘American?’ they ask. ‘No,’ I say, ‘Australian British.’ ‘How old?’ they say, again. ‘Forty-one,’ I say. ‘Yes, we know a girl‘, they say, ’27,’ they say, ‘with a daughter. Yes, she left a daughter behind.’

Oh, I think, so that’s worse than Rach is it?

Words for Rach

February 2012. From Liverpool to New Jersey, rosemary for remembrance. For Rach.

On Monday 6 February 2012 my dear friend Rachel Cheetham, blogger at The Cancer Culture Chronicles, died of metastatic breast cancer. This last week I left the blog in the good hands of my beloved partner Ronnie Hughes, as I travelled over to New Jersey to say goodbye to Rach. I’ll be posting more about this, and also editing film of the service. But for now, here are my words for Rach, as read by me on Saturday 11 February 2012 at the ‘Celebration of Life’ service for Rachel in New Jersey.

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I’ve only known Rach for a fairly short time, but we very quickly became close. I was looking back through my emails to see when we started to get to know each other and I found the first message from her in November 2010. You see Rach and I both inhabit the ‘blogosphere’ – that’s what we call the space where we bloggers meet. Yes I have a breast cancer blog, like Rach. I too have been diagnosed with breast cancer, at a relatively early age, have been treated, have spent years of my life being a patient. But unlike Rach, I’m lucky. I’m lucky because my cancer hasn’t behaved like Rach’s did – at least not yet. So I’m still here to talk about the life I’m living after diagnosis, which for the most part doesn’t involve much medical intervention. But the thing that Rach and I immediately had in common was that we disliked the culture of breast cancer that wanted us to be triumphal survivors. You may have read Rachel’s obituary, written by Anthony (her beloved husband), about how they got on with their lives after Rachel’s diagnosis and treatment….

Confident treatment was successful, because everyone “survives” breast cancer, don’t they?

But in fact, not everyone survives breast cancer, and bloggers like me and Rach felt that telling the truth about breast cancer might actually help us start finding a cure, and eradicating the disease in the first place.

Oh Rach

The Skyping begins. Rachel interviewing Sarah for her Can Do Women blog, January 2011

Still Ronnie, standing in while Sarah is New Jersey.

Is it still too soon? I want to write Rachel something lovely. Something as good as anything I’ve ever written. (Something as beautiful as her friend Chemobabe’s eulogy, or as world-changingly essential as Gayle’s) She deserves at least that. But I can’t, yet. I need to take the fact and my feelings about her death to the park, to the cathedral, to the river – to my sacred places. I need to tell them about her. And my sense of loss. Until I’ve done that I won’t find the words, my words, for my friend Rachel.

So, for now, here is a very short poem.